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A brave little boy's fight against Neuroblastoma

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Happy 4th of July!

Posted at 02:27, Friday, July 4, 2008

Hello,

I know I have not updated in a long time and really the reason being there is nothing going on.  We have just been going thru life day after day as any other family would be.  Mariah has been busy with baton and Majorettes and myself and Matt have been busy working and doing things around the house.  Matt is in the process of remodeling our bathroom in the basement and I have been busy trying to paint the foundation of the house in between rain storms.  So as you can see nothing is new. 

I have finally gave the go ahead on the headstone for Carter's grave about two weeks ago so they are saying it should be about two months before we actually have it.  I wish it was going to be here for August 18th but it isn't looking very promising.  For some reason June 18th was a tough one have no idea why but I found myself crying at dinner in the middle of Bob Evans.  I cannot beleive it is going to be a year already.  It has seemed like forever but at times it seems like just yesterday.  I am so glad to have Mariah to keep me busy  " even though I complain about it " It has worked out well I have been driving her to South Point in the morning with her buddy Breanna and her mom has been picking them up in the afternoon.  At first I was taking my lunch hour to drive out and pick her up and it was making me insane.  I did make it there and back but it just made the entire day seemed so rushed.  Not to mention because she missed some practices for Modernettes because she was at baton for the high school she has to make up the time so she stays there till 3 every day to make up the hours she missed.  I really think it is crazy but I guess you gotta do what you gotta do.  So for the most part she is drinking eating and sleeping twirling baton.  I beleive the discussion here has been that this will be her last year for modernettes.  Not sure if she will continue to take private lessons at Ruby's and compete solo next year but she is definately quitting the Modernette core after this year.  With her going into 9th grade and this being a year where they will go to Worlds Competition it will require her to practice way to much and she wont be able to keep up with grades and school stuff.  Not to mention I am not sure I want to pay for a trip to Worlds but if she said she wanted to go I would find a way.  She has been so excited about getting her braces off I cannot beleive it has been three years already.  She has not quite met her goal for saving up to have her teeth whitened once she gets them off so she is scrambling for last minute baby sitting jobs to get the rest that she needs.  I have told her for 2 years now that if that was something she wanted to do she would need to save her money up which she has been doing but she is not quite there yet.

As for the 4th we are home cleaning and catching up on house work that we usually have to do on the weekends but have an extra day to do.  So as I said we are just caught up in every day life just like everyone else and just taking each day as it comes.   

As for August 18th I have decided to take off work that day and we have been tossing around ideas of doing something that weekend but not sure what or where.  I myself find that the 18th is hard but really everyday is hard and feel that you just have to keep moving forward and keep all the memories fresh.  So for me talking about what he did and what he would have done or what he said that made you laugh fresh helps me. 

Mariah has just about finished up her sessions with the carinig place and that has seemed to help her.  We went to the Verizon Kennywood picnic as we always did and it just wasn't the same without him but he was definately with us.  Robbie rode the pitfall this year because he was tall enough and he then rode the Exterminator which you would never think he would ride but since it was Carter's favorite ride he said he would do it for Carter and he did I was so proud of him.

So I hope everyone has a safe and happy 4th!  This was definately one of his favorite times to light stuff up and play with fireworks. 

Miss Ya my little man! 

Love Rhonda



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