Carter's Journal


A brave little boy's fight against Neuroblastoma

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Saying GoodBye to January

Posted at 02:31, Saturday, January 26, 2008

Good Morning,

We brought in the New Year with about 4 teenagers at the house and it was actually kinda nice.  Initially when Mariah said that she wanted me to stay home on New Year's Eve I thought it was because she just wanted to spend time with me YEAH RIGHT she wanted me to host a party for her and her friends and play chaperone.  Oh well at least we were together.  I really didn't have plans anyway.  I vividly remember last year's new Years eve The Ronald was having a huge party at the house and Carter wasn't feeling the greatest but insisted that we go to the party so that he could charge the kids for giving them tatoos so he could pocket some cash but it ended up that his platelets were so low and he had a loose tooth that wouldn't stop bleeding so we were off to Sloan around 10:00 of course after he did a couple of tatoos.  Rich had set him up with a station in the dining room.  So I bundled him up in the stroller and off we went.  We were there being discharged after he received platelets about 3 minutes till midnight so as midnight arrived we were walking down York Avenue while everyone was screaming and beeping their horns.  I don't think I will ever forget our last New Years together.  I MISS YOU SWEETY!

January was been a huge adjustement I started my new job on the 7th and it has been routine for me to go to work eat dinner and go to bed.  It has been a huge adjustment.  But I do love my job.  Thanks for all the birthday cards and emails!

Mariah ended up once again sick after another 3 weeks.  I thought after the 3rd month of taking her in a row to the doctors that we finally had these allergies and colds under control but UPMC had a different plan.  Her last visit they put her on Allegra D every day two times a day and it seemed to keep her snotty free.  But UPMC thought that she didn't need it and they didn't cover it so she was off of it for a week and ended up sick all over again.  So she ended up back at the pediatrician's office again for the 4th month in a row with another cold so she is back on steroids and another antibiotic  and a steroid inhaler and doing breathing treatments once again.  I am hoping that my new insurance with my new job covers allegra D and once I can get time off I can get her to the allergist again and really push for allergy shots.  She is now on the winter retreat for the weekend with church.  She just loves going and spending time with the youth group.  I just hope that she takes her medication while she is there.  As far as school looks like she will be grounded for the next 9 weeks for not doing so hot and it is going to be 9 weeks of nose in the books every night she is really going to hate me in the up coming weeks. 

All in all we are doing ok I really had a hard time when the six month mark came.  I cannot beleive that it is 6 months already.  I still have the slap in the face break downs as I see a picture of him or hear a song I just start balling you just never know when they are going to occur and when they do I have realized that you cannot hold it in.  So one thing I have learned is to let it out as it comes and then I feel alot better. 

So pretty much to sum everything up as Alex would say When life hands you lemons make lemonade!!!!!!  I truly have learned to live by this no matter what the circumstance is. 

Thank you again for everyone's support emails, phone calls and cards!!!!!

Love Rhonda



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